Death with Dignity: the documentaries de-stigmatising end-of-life care

André is an Idiot is the latest in a line of refreshing films that tackle the taboo of death head-on.

“Now that sex is available to us in hardcore porno films, death remains the one last taboo in cinema,” wrote the film critic Amos Vogel in 1980. Sex and death, Vogel believed, were the two facets of life hidden behind closed doors – with cinema one of the few artistic mediums with the ability to bring those private human rites out into the open. 

More than 40 years after Vogel’s assertion, death is still stigmatised onscreen. Illness more generally is often treated with squeamishness; the genre of films and documentaries dedicated to death, from cloying romantic tragedies such as The Fault in Our Stars to tense, harrowing end-of-life docs like Extremis, are understandably imbued with gravity – but are also guilty of fuelling a sense of fear. Conversely, the high body counts in action movies, thrillers, horrors and noirs usually put minimal emphasis on minor characters’ deaths in favour of driving the plot forward. Death in film is often either over-sentimentalised or downplayed, the sober reality conveniently kept at arm’s length.

However, a string of recent documentaries are tentatively trying to break down the barriers around this once unbroachable subject. Through Kirsten Johnson’s docu-fantasy film about her father, Dick Johnson is Dead, the documentarian grapples with mortality in a truly unconventional way, creating different scenarios for how her father could pass, ranging from the probable to the absurd. These are enacted to help prepare the father and daughter for his actual death (with the help of fake blood and a few stunt doubles). In Steven Eastwood’s Island, the terror and repulsion typically surrounding cinematic death is stripped away as the final moments of four people with terminal illness are tenderly recorded. Then there’s The Endfluencers, which charts the growing phenomenon of people sharing their experiences with terminal illness on social media.

André is an Idiot is the latest addition to this burgeoning new category of films. Like Dick Johnson is Dead, it takes a light-hearted approach to our demise. “I hadn't heard from André in probably five years,” says the documentary’s director Tony Benna, recalling how his old advertising colleague and friend suddenly invited him to a Zoom call. “He said, ‘I've got a really fun project. [...] Okay, guess what? I've got a stage four cancer, and I want to make a comedy documentary about it.’”

Partly an ode to André’s eccentric personality, partly an unorthodox look at the realities of dying, Benna’s documentary starts off with an unusual premise: its subject neglected to get his colonoscopy when he should have, hence the reason why he is an “idiot”. The documentary locates the humour in the situation, but is also stippled with poignant revelations, from the realisation that for other people life goes on after death, to the strangeness that it is possible for André and his friends and family to have fun with his diagnosis. There are also grounding truths, such as the observation that “dying is surprisingly boring”. 

Making Benna’s offbeat documentary was a means for one person to reclaim the narrative around their own death. Rather than being steeped in melancholy as traditional films about death and dying often are, it resists the same gloomy trajectory. André wisecracks not only about the nitty gritty of colon cancer, but about how he wants to die, from “death yells” and head transplants, to cloning and Russian roulette with Californian death pills. “It's okay to buck convention,” says Benna. “It's okay to die how you want to die. André really allows us to look at our lives and our deaths in a way where we don't have to follow convention or rules.”

This cinematic wave coincides with the emergence of the “death positive movement”. Spearheaded by Caitlin Doughty and her collective The Order of the Good Death, they advocate for the de-stigmatisation and acceptance of death as a natural process, to encourage people to find the end-of-life rituals and processes that suit them. 

Recent debates around euthanasia in European and American politics have also undeniably contributed to a growing awareness of the idea of a “good death”. “DeathTok” (a branch of TikTok dealing with – as the moniker suggests – all things death-related) is also contributing towards making such conversations accessible, while the documentaries Edge of Life (2025), Last Flight Home (2022), Endgame (2018) and How to Die in Oregon (2011) all examine the current state of palliative care and medical interventions in death. 

According to Benna, bringing levity to the conversation is a crucial step towards bettering the care provided. “A lot of us are so afraid to communicate with each other when we find out somebody's ill,” he explains. “We almost ostracize the sick, because we don't know what to say. [...] There was a lot of back and forth during the post-production of this project, where there was a fear that people wouldn't be able to [cope with] André making jokes and being so light-hearted about such a dark situation. There was some pushback that maybe we should make this into more of a traditional cancer film. We watch those with fear, whereas if you're able to flip that on its head and watch something about death with humour, all of a sudden it becomes acceptable, it becomes digestible and a conversation piece.”

These recent documentaries are certainly not the first to portray real-life death. Frederick Wiseman’s six-hour-long Near Death (1989) interweaves testimonies from doctors, nurses and patients at a Boston hospital. Allan King’s Toronto-set Dying at Grace (2003), like Island, profiles five terminal illness patients, while Wang Bing’s Mrs Fang (2017) is a character study of one woman’s gradual decline. But there is a different tone struck by the likes of Benna and Johnson, summed up in Johnson’s film with the image of her father casually trying out coffins. Where those with sickness have long been othered in film, these new documentaries encourage us to become acquainted with the idea of our own death so that we too can come to terms with its inevitability. 

Filming actual death does continue to present a thorny dilemma in terms of the consent and dignity of those being portrayed. “André used to joke, ‘You guys are going to miss the [final] shot because your light's not going to be in the right position,’” says Benna. He asserts that filmmakers need to consider the needs of their subjects on a “case-by-case” basis. His team decided against filming André’s final week to allow his friends and family the intimacy they otherwise may have lost. 

Ultimately, films like André is an Idiot and Dick Johnson is Dead are a tribute to the lives of their subjects as much as an examination of death – with the understanding that, maybe paradoxically, death is just another component of our existence worthy of committing to camera. “We can celebrate death,” insists Benna. “We can celebrate sickness. It's just part of our lives.”



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